Not too much news

Friday morning and the hospice nurse made a visit to our home. There have been no significant changes in JB's status over the week. Most of the week we have had coverage of spending time at home with JB as he is dealing with his late stage cancer. He is sleeping most of the time and remains mainly in a semi-conscience state when he does stir. Most of his communication revolves around dreams that are spinning in his head at the time. That makes it difficult to assess how he is feeling in regards to pain and comfort. We are doing our best to get the information from him to keep him supplied with the medications which are helping the pain.
Many friends and family have contacted us to inquire about his status in efforts to arrange time to visit. Our basic policy is going to be that anyone is welcome to visit knowing that JB is not usually interactive in a way we are all used to. As I mentioned, most of the time he is sleeping and when he wakes he might be aware of who is present but might communicate in non-sense language. We were told not to be contrary to his communication, rather to try to understand where he is at and comfort him if he is dealing with any strange or disturbing dreams.
JB's general vital statistics are fairly strong, a regular heart rate and blood pressure as well as no secondary sickness setting in. JB has always been vital and fit, and we expect athletic history will provide him with strength as other parts of his body become overwhelmed with the growing cancer. There is no way to determine exactly how much time his body will fight to stay alive. As I have mention, my main desire these last few weeks has been to hope that his mind could rise from the stupor such that we could be present with him. It is possible that the melanoma is reoccurring in his brain and other tumors might be affecting his thoughts, and it is possible the drugs affect his mind too. In all likelihood it is a combination of all of the above which presents us with the problems he deals with now.
I wish to express my gratitude to all the family and friends that are showing up and helping, along with those who desire to offer help in the upcoming days. I see the experience as traumatic for JB and all of us trying our best to help him, and thus our combined spirits and energies will be best utilized combined to keep everyone going strong through these difficult times.

6 comments:

Anonymous said...

Jason and John, please know you are in our thoughts and prayers. We wish there was more we could do. Know that you are both loved dearly. Larry & Sue

Sarah said...

I'm a long time lurker on your beautifully written blog...I wish you all the peace, calm and comfort in the world. The love you both have for each other leaps off the pages of this blog and your honesty about the trials of illness are poignant. What amazing men you are.

Stephanie said...

You are both in my thoughts and prayers during this most difficult time.

Cees said...

My thoughts are with you my friends I can only send you my love....

Cees

Donald Engstrom-Reese said...

My Dear Friends and Feres ... our prayers are shinning into the deep realms, calling heart to heart. The Ancestors are preparing for the journey. The love of a life time is glowing brightly in the Halls of Transformation.

I love you.

Donald

Lynn said...

Jason, thanks for your frequent updates. You and J.B. remain in my thoughts and prayers, and I hope you find the moments of lucid presence that you desire.

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